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Ot cancer treatment
Posted: Fri Jan 24, 2025 11:23 am
by stuball888
As some of you on the board already know, I am under treatment for non-Hodgkin's lymphoma. I am in a clinical trial so I am not getting chemotherapy or radiation, but I'm under immunotherapy. The good news is it has an 85 to 90% total remission rate I will be receiving my treatment at Sloan Kettering in Uniondale and being on a strict pill diary and getting infusion and shots each Tuesday eventually it will be once every three weeks. My immune system might be compromised a little bit as one of the side effects but hopefully right now I'm feeling fine and in good spirits. Hope to see you all at the game soon. Just need a little bit more time.
Re: Ot cancer treatment
Posted: Fri Jan 24, 2025 11:37 am
by Jojogunne
Keeping you and your family in my prayers, Stu.
Re: Ot cancer treatment
Posted: Fri Jan 24, 2025 1:42 pm
by The Shadow
To Stuball888, My family wishes you all the best on a quick recovery.
Re: Ot cancer treatment
Posted: Fri Jan 24, 2025 3:34 pm
by Wags
Best wishes, Stu. I hope the treatment is very successful. Praying for your full and SPEEDY recovery!
Re: Ot cancer treatment
Posted: Fri Jan 24, 2025 4:07 pm
by triplec2195
Godspeed Stu and praying for a full recovery. You're a tough guy!!
Re: Ot cancer treatment
Posted: Fri Jan 24, 2025 9:51 pm
by JoeyBagODonuts1
Wishing you a speedy and full recovery Stu. You got this!
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Re: Ot cancer treatment
Posted: Sun Jan 26, 2025 10:12 am
by HUSID74
Stu, so sorry to hear but prayers to you and your family for a qyick and full recovery.
Re: Ot cancer treatment
Posted: Sun Jan 26, 2025 7:09 pm
by Pride97
Prayers to you Stu on a quick and full recovery!
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Re: Ot cancer treatment
Posted: Wed Jan 29, 2025 7:38 pm
by Hofstra
Stu, all the best. Thinking about you.
Re: Ot cancer treatment
Posted: Thu Jan 30, 2025 6:21 pm
by stuball888
Thanks for all your well wishes
I am a little into the second week of my treatments between the four drugs I'm taking and the infusion and shots. It's taking a toll on me a little bit.
Side effects have been lack of energy Wednesday. I stayed in bed all day. It's what we call Herkel Durkel
I now have my energy back and have no appetite
My wife said I can now shed those pounds
Thats now how I would like it but I will take the weight loss for now
I'm very happy with the care. I'm getting from Sloan.
The next two weeks will be the hardest because the dosage of medication will be increased tremendously, but after that, my body should get used to it and hopefully things will return to normal for me. Hope to see you all soon and go flying dutchmen
Re: Ot cancer treatment
Posted: Fri Jan 31, 2025 12:52 am
by cactus
Thanks for the update Stu, hope the next two weeks fly by for you. best wishes always for a speedy recovery
Re: Ot cancer treatment
Posted: Wed Feb 05, 2025 11:40 am
by stuball888
OK, an update on my second treatment
This one went much better than the first one even though they increase my dosage from 5 mg to 45 mg with a shot. It seems my body has adjusted to having the extra drug in my system.
So hopefully things will go well notice that the lift is starting to shrink so that's a good sign
The good news and bad news. The good news is I have my appetite back. The bad news is my appetite is back.
Re: Ot cancer treatment
Posted: Wed Feb 05, 2025 1:23 pm
by cactus
Glad this treatment went much better than the first. Regarding your appetite - just limit your white-colored foods (salt sugar flour) and you will be fine!
Re: Ot cancer treatment
Posted: Wed Feb 05, 2025 4:22 pm
by The Shadow
To Stuball888, Great news on your treatment! I guess all those good wishes and prayers just might be doing some good. Keep it up! My family is pulling for you on your valiant recovery. Those Doctors and health care professionals at Sloan-Kettering sure seem to know what they're doing!
Re: Ot cancer treatment
Posted: Wed Feb 05, 2025 6:29 pm
by stuball888
very happy with the care Im getting
They are through and efficient
it also helps that Im only 10 minutes away from Uniondale
Re: Ot cancer treatment
Posted: Wed Feb 05, 2025 10:05 pm
by JoeyBagODonuts1
Glad to hear the treatment is going well!
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Re: Ot cancer treatment
Posted: Thu Feb 06, 2025 12:30 pm
by Wags
We're all glad to hear you're making good progress, Stu! Thanks for keeping us updated. Looking forward to keep hearing more good news!
Re: Ot cancer treatment
Posted: Sat Feb 15, 2025 10:07 am
by stuball888
Update on my treatments
So this past week was the toughest for me so far
The drugs are taking affect me
Low energy and tiredness
I do go into work, but I usually leave halfway through my shift
Next week will be the toughest on Tuesday. I have my final shot and cycle one and infusion then on Thursday I have to go into the city to Sloan and have a biopsy done.
After that, the infusion and shots are only once every three weeks
The good news for me is my appetite is very low right now
When I started the treatment, I weighed 198 now my way to down to 184
Re: Ot cancer treatment
Posted: Sat Feb 15, 2025 4:01 pm
by dutchPride86
All the best to you Stuball keep fighting!
Re: Ot cancer treatment
Posted: Sat Feb 15, 2025 5:20 pm
by Mark19th
Best of luck.
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